Hey blogging world! Long time no see. I’ve decided to start blogging again to document what’s going on in my life right now. You see, this past year has been absolute hell to put it nicely. I’ve gone from being a marathoner to not being able to walk without pain.
I was diagnosed with bilateral popliteal artery entrapment syndrome. I know, it’s a long name. Basically, this means that one of the muscles behind my knee is attached abnormally and is crushing my popliteal artery (the main artery behind the knee). My right popliteal artery is completely blocked and requires bypass surgery and my left popliteal artery is partially blocked when I push off with my foot. Popliteal artery entrapment syndrome is a rare problem that normally occurs in young athletes.
It’s been a very long journey getting to this point. I first noticed symptoms last December, although I now realize that I had symptoms long before that. In the matter of about a week, I went from half marathon training to not being able to run for longer than 100 meters because my right calf would cramp so badly. I’m not talking about a little bit of aching. I’m talking about the feeling of trying to run with a Charlie horse. Within a matter of minutes of stopping, though, the pain would completely disappear.
At first, I thought that it was compartment syndrome again, but after repeating that fun test my pressures were normal. There were some other pretty weird symptoms going on too. My big toe is numb and sometimes I get weird tingling sensations in my foot and lower leg. Probably the weirdest one, though, was what happens when I walk. My foot loses color and starts turning a pale white. It’s pretty creepy.
I tried getting a deep tissue massage, didn’t work. I tried physical therapy, didn’t work. MRI didn’t show anything wrong. Then I was referred on to a vascular doctor and a whole new round of tests was done. Ultrasound, treadmill test, an MRA, and finally an arteriogram was done.
All the while my symptoms have been getting worse and worse. It’s now at the point where it hurts just walking. Standing for long periods of time is also painful. Even pushing down on the gas pedal when I’m driving causes my calf to cramp.
Hearing the diagnosis was absolutely shocking. The worst I was expecting was that I had compartment syndrome again and needed another fasciotomy. Instead, I found out that not only do I have popliteal artery entrapment syndrome in my right leg, but my left leg (which is relatively asymptomatic) as well. This probably explains why my right leg has never been all the way better since I had compartment syndrome. That’s probably why I couldn’t get past mile 20 in a marathon without my calf completely seizing up and why I get Raynaud’s so much worse in my right foot than my left.
I’m finally scheduled to have surgery on October 13th at the University of Maryland Medical Center. I will be having a muscle release and bypass done on my right leg. Then I’ll have to wait another 2-3 months and get a muscle release done on my left leg. Even though my left leg doesn’t have many symptoms, they want to fix it earlier on to prevent needing a bypass like my right leg.
I’m looking forward to getting this surgery done so that I can get my life back. I’m a 23-year old marathoner that is in pain just walking. How wrong does that sound?! I want to get this surgery behind me and finally get on the road to recovery.
Thanks for joining me on this journey. I plan to make regular updates. I hope that sharing my story will bring a little more awareness to this weird syndrome. Maybe another “Laurel” will find this blog and be able to understand a little more of what to expect.